It’s been exactly nine months and today I’m ready to collapse. My body is tired and sore. The doctor says I need to be patient, “this is a marathon and not a sprint.” But I’m feeling impatient. Will I ever be rid of this intruder?
Chronic illness. No matter what you eat, meds you take, it’s hard to move forward. It can be a very, very constrictive tunnel.
When I wrote Orphaleena, I was in a different tunnel. It wasn’t one of physical pain but spiritual. I walked through daunting fears and threw off lies. I was finally rid of the defeat that had bound me for so long. I was being called to trust the One who holds my hand and my heart. What a rush of relief when I saw the light (and the exit sign) at the end of that tunnel! Pure joy!
However, it was in a hospital bed nine months ago when I abruptly found myself in a very confusing, untraveled tunnel. Where was I? What was happening? Words like MS, Bell’s Palsy, and Guillame Barre were causally being tossed around my hospital room – and not in English, mind you. Oh the world of French medical grammar! The left side of my body was partially paralysed and I needed help walking to the toilet. During those first 3 months I underwent all sorts of exams; MRI’s, CAT scans, PET scans, Spinal taps, etc, etc.. After three different hospital stays in three different cities, they sent me home.
After five months in the dungeon of “no diagnosis”, I finally received my long awaited results from Germany. These seven blood tests I had taken came back positive for the Borrelia Burgdorferi (lyme) bacteria and a few other nasty parasites. I have Lyme disease. The relief of finally having a correct diagnosis quickly dissipated as I pondered the future… what is chronic Lyme disease? What does that mean? How do you treat it? Is it curable? It felt good to have proof that the French doctors, who had diagnosed me as “psychosomatic” and that “crazy lady,” were wrong, but I could see the looming, YOU ARE NOW ENTERING A TUNNEL sign straight ahead and there was no exit ramp.
Today, as I type, I’ve been four months on antibiotics, natural supplements, herbs, a strict regime and a hard diet of tearful prayers. This could take another six months or even six years, only God knows. I’m realising that living with chronic pain and debilitating symptoms these past nine months will either make me bow or make me bitter. Yikes! Yet, no matter the pain, I do not want this suffering to go to waste. Let it humble me, soften my heart and open it wide to the love of God. May I have empathy and compassion for those who suffer and offer them the love that’s been poured out on me.
We all need God’s mercy poured out on us this very moment. Without it, these tunnels will be impossible to pass through. Life is swallowed by pain. Whether it’s the treatments, the altered family life, the isolation, the pain of even getting up in the morning, it can devour us and if we’re not careful, we can lose sight of the very One who has our hand, our Guide.
“This will make me bow or make me bitter…” that’s so good and true. You’re doing an amazing job, Sara! Press on, friend.
Thank you, Jen.
Hey Sara. Loved reading your blog this morning…so transparent, so honest, so real!! I’m praying for you, trusting that God has a purpose in all this, and that He will reveal that to you. I humbly submit two items that have been helpful to me and maybe they will be for you. Take them or leave them! The first is a sermon that J.D. Greear preached in a sermon series on Judges. Here’s the link: https://www.rightnow.org/Content/Series/185777#5 The second is one of Joni Earekson Tada’s devotional books: Beside Bethesda. I’m not sure if you’re up to reading (or listening) but if you are, I hope they will be helpful. You are loved by so many! I, like them, continue to walk with you in this journey! OX
Hey Jacque! Thank you for your encouraging comment. I will listen to the sermon by J.D. Greer this week and you’re the 3rd person to recommend Joni’s, “Beside Bethesda” book. However, I still can’t read, yet. I’ll check into the audio version. Love ya.
Looking forward to having our own copy of Orphalena 😀 Waiting on our monthly courrier service for packages. Following on FB and praying for you.